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Notice to members of the public searching for information on inherited diseases:
The HGMP-RC provides a service to researchers working on the Human Genome Project, but we are not the most appropriate people to ask about specific genetic diseases.
We advise you to find a national support group for the disease and contact them. They will be in touch with people who are directly working on the causes and cures of this disease and will usually have a regular newsletter that you can subscribe to.
Your family medical practitioner or your local public library would be a good place to start in contacting the support groups.
You should also search the OMIM and GDB databases.
Places to start searching
Diseases, Support Groups and Patient Information
Background Information
Diseases, Support Groups and Patient Information
Any Comments, Questions? Support@hgmp.mrc.ac.uk